The experiences of people who receive swallow therapy following surgical treatment of head and neck cancer

Abstract Purpose This research was initiated to explore the experiences and important elements of swallow therapy in people following surgery for treatment of head and neck cancer. Methods One to one, face to face interviews were conducted with people with head and neck cancer post oral reconstructive surgery (free, pedicled or bony flap), 7-14 days post-surgery. Analysis was conducted using interpretive phenomenology. Results Analysis of interviews from 15 patients identified two overarching themes: ‘I never dreamt’ and ‘They look at you and they speak to you’. There was no way to adequately prepare for the enormity of surgery and its consequences, however the way health professionals interacted and communicated with the person, rather than their altered and disfigured selves was healing and therapeutic. Conclusions Novel ways to prepare people for head and neck cancer surgery, and support in recovery are required, including ways to connect and help people feel human again.