Background: A key aspect to the provision of palliative care is maintaining the dignity of the individual being cared for. Nurses working in the community setting need knowledge and skills to meet the needs of individuals who need palliative care and their families. Dignity Care Intervention Ireland is a community-based pilot project designed to implement a dignity care intervention for individuals with a life-limiting condition living in their own home. As part of the overall intervention, an education programme was developed for nurses working in the community. Method: Completion of a locally-designed questionnaire pre- and post-education. Results: Nurses working in the community setting welcomed and highly valued the Dignity Care Intervention Ireland education programme. There was an overall improvement in the understanding of palliative care for both groups and improved understanding of the principles of palliative care, with self-evaluated competence to apply these principles in daily clinical practice. Conclusion: The importance of education about palliative care to support the delivery of dignity-preserving care cannot be underestimated. Ensuring nurses have the requisite knowledge will enhance future practice development and subsequently improve care for patients with life-limiting conditions and their families.
Meeting the information needs of entire community including patients, families, carers, health and social care professionals and researchers is important in a society where online resources are an increasing source of information. Providing this information digitally on one location will reduce the burden on individuals trying to navigate the internet and multiple sources of information, which may not be appropriate or relevant.To develop The Palliative Hub as a gateway for information, education and guidance regarding palliative care.Drawing on the skills and expertise of a range of stakeholders, working groups were established, which represented service users, carers, providers, charities and advocacy groups. The purpose of these groups was to assist with the design and development of the Palliative Hub, as sites to provide information, education and guidance about palliative care. The Palliative Hub, whilst providing information, also acts to filter and direct the user to the most relevant sources of further information.It is anticipated that this resource will assist with meeting the palliative care information and education needs of the entire community in one place with key signposts to relevant sources and resources.The Palliative Hub has the potential to become an integral element in meeting the palliative care information and education needs of the entire community and is an example of an innovative and collaborative project across the island of Ireland, which could be translated across other jurisdictions.
Deciding whether to transition to wound palliation is challenging for health care professionals because there is no agreed definition or understanding of palliative wound care, including the goals, core elements and differences from general wound management. To conduct a scoping review with qualitative synthesis to define palliative wound care in terms of its conceptual framework, goals, principles, components, and differences from general wound management, and provide a new definition of palliative wound care based on this scoping review. Published literature that refers to the definitions, concept, goals and core elements of palliative wound care using any methodological approach, without any time limits, published in English. The searches were conducted in CINAHL Complete via Ebsco, Medline via Ovid, Cochrane Library, Scopus, and Google Scholar. A data extraction form was developed by the review team and used independently for data charting purposes. Braun and Clarke's six phases of thematic analysis guided the qualitative synthesis. A total of 133 publications met the inclusion criteria. Three main themes were developed to define palliative wound care and understand its differences from general wound management: 1- Healing potential of wounds and patient vulnerability, 2- Understanding the impact on individuals and family to address needs, 3- Towards new goals and perspectives in approach to care. Palliative wound care focuses on symptom management, comfort, and dignity, but does not always target the healing of the wound, which is the goal of general wound care. The needs of the individual and their family must be addressed by clinicians through the provision of care and support that takes into account the true meaning of living and dying with a palliative wound. A review protocol was developed but not registered.
Many people receiving palliative care wish to die at home. Often, support from family or friends is key to ensuring that this wish is fulfilled. However, carers report feeling underprepared to undertake this role. This paper describes the process of developing a consensus and evidence based website to provide core information to help people support someone receiving palliative care on the island of Ireland. The project comprised three phases: (1) a review of systematic reviews facilitated the identification of core information needs; (2) content was developed in collaboration with a Virtual Reference Group (VRG) comprising patients, carers and professionals; and, (3) subject experts within the project team worked with a web developer to précis the agreed content and ensure it was in a format that was appropriate for a website. Members of the VRG were then invited to test and approve the website before it was made available to the general public. Nineteen systematic reviews identified nine consensus areas of core information required by carers; a description of palliative care; prognosis and treatment of the condition; medication and pain management; personal care; specialist equipment; locally available support services; what to do in an emergency; nutrition; and, support for the carer. This information was shared with the VRG and used to develop website content. We engaged with service users and professionals to develop an evidence-based website addressing the agreed core information needs of non-professional carers who wish to provide palliative care to a friend or relative.
Competence-based education in health and social care has been promoted through the Tuning Process in Europe. This papers reports on the process of developing a Palliative Care Competence Framework for health and social care professionals working in the Republic of Ireland.A Palliative Care Competence Framework Steering Group, comprising a range of health and social care professionals, was established to oversee and drive the development of the framework, through identification of core competences and related indicators and supporting the work of 10 working groups to develop discipline specific competences.The Palliative Care Competence Framework identifies six domains of competence with core indicators which all health and social care professionals should be able to demonstrate on completion of initial academic programme for professional registration or in the context of their current job. Discipline-specific competences supplement the core competences and describe additional skill-specific competences acquired during training in that discipline. Discipline-specific competences are organised in three ascending levels of expertise of palliative care practice.The framework describes universal core competences in palliative care while also detailing individual competences for each health and social care discipline. It is envisioned that the framework will inform academic curricula and professional development programmes, and so will enhance the care of people with life-limiting illness, fostering greater interprofessional and interorganisational collaboration in palliative care provision.
Meeting the information needs of entire community including patients, families, carers, health and social care professionals and researchers is important in a society where online resources are an increasing source of information. Providing this information digitally in one location will reduce the burden on individuals trying to navigate the internet and multiple sources of information, which may not be appropriate or relevant.
Aim
To develop the Palliative Hub, as a gateway for information, education and guidance regarding palliative care.
Method
Drawing on the skills and expertise of a range of stakeholders, working groups were established, which represented service users, carers, providers, charities and advocacy groups. The purpose of these groups was to assist with the design and development of the Palliative Hub, as sites to provide information, education and guidance about palliative care. The Palliative Hub whilst providing information also acts to filter and direct the user to the most relevant sources of further information.
Results
It is anticipated that this resource will assist with meeting the palliative care information and education needs of the entire community in one place with key signposts to relevant sources and resources.
Conclusion
The Palliative Hub has the potential to become an integral element in meeting the palliative care information and education needs of the entire community and is an example of an innovative and collaborative project across the island of Ireland, which could be translated across other jurisdictions.
The meaningful involvement of people receiving palliative care (service users), carers and the wider community is essential to informing palliative care education, research, policy and practice. A group was established on the island of Ireland in 2013 for this involvement. By 2016, as this group had come to the end of its membership term, a significant project was undertaken to refresh membership.
Aim(s)
The aim was to renew and refresh group membership, fostering diversity of membership and ensuring that involvement remained worthwhile, and to increase the remit of the group's involvement in health structures in both jurisdictions on the island. Consideration was also given to a range of flexible methods of involvement wider than the original concept.
Method
A recruitment drive was launched by the recruiting organisation in July 2016. This was supported by a suite of information on the organisation's website – promotional flyer, video, information leaflet, guidance for applicants and an expression of interest form. The opportunity was promoted through other networks; use of the flyer, email, social media and a press release.
Results
More than 60 people asked to find out about the opportunity and 45 expressions of interest forms were received. A small number of applications were not progressed when involvement was clarified. An opportunity to renew membership was extended to current members. Invitations were issued to potential new members (43) and renewing members (13) to a meeting in September 2016. Terms of Reference, which were discussed at the meeting and amended, were issued to 54 people in November 2016. Receipt of a signed copy confirmed membership of the group. A total of 44 members confirmed membership. Since September 2016 they have been involved in a range of activities informing palliative care education, research, policy and practice across both the Republic of Ireland and Northern Ireland.
The analysis of the evidence, facilitation and context of the response to the covid-19 in Cyprus using the Promoting Action on Research Implementation in Health Services (PARiHS) framework
The Health Service Executive (HSE) Palliative Care Programme Briefing Document (2012) identified the development of a Palliative Care Competence Framework as a key objective for the coming year. The framework will support managers, teams and individuals in identifying appropriate palliative care competences for use within their organisation or workplace.
The Health Service Executive (HSE) Palliative Care Programme Briefing Document (2012) identified the development of a Palliative Care Competence Framework as a key objective for the coming year.
The Health Service Executive’s Palliative Care Programme convened a Project Steering Group to support, guide and oversee the development of the Palliative Care Competence Framework. The steering group comprises members from the Health Service Executive (HSE), All Ireland Institute of Hospice and Palliative Care (AIIHPC), the Irish Association for Palliative Care (IAPC) and the Irish Hospice Foundation (IHF).
The purpose of this project was to develop a Palliative Care Competence Framework for health and social care professionals working in various health care settings. The framework is intended to provide for core competences in palliative care whilst also detailing individual competences for each health and social care discipline. It is envisioned that the framework will inform academic curricula and professional development programs, and so will enhance the care of people with a life-limiting condition, fostering greater inter-professional and inter-organizational collaboration in palliative care provision.
The Palliative Care Competence Framework reflects a move to standardisation of undergraduate and postgraduate education in Europe and how this relates to the development of competence using the Tuning Approach. The Tuning Approach provides a guide for attainment of knowledge, skills and attributes for practice in the health and social care professions.
The Palliative Care Competence Framework was developed using the Tuning Approach which provided flexibility and autonomy to develop both core and discipline specific competences for generalist and specialist palliative care. The outcome is a clear framework for evidence-based, safe and effective palliative care for generalist and specialist practitioners irrespective of place of practice.
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