Dirk Kilian

University Medical Center Hamburg-Eppendorf

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Alfried Kohlschütter

Universität Hamburg

Angela Schulz

Universität Hamburg

J. Guiserix

Centre Hospitalier Universitaire de La Réunion

Miriam Nickel

Universität Hamburg

L. Füzesi

Universitätsmedizin Göttingen

Parisa Moll-Khosrawi

Universität Hamburg

F. Binois

Hospital General de México

Torsten Liersch

Universitätsmedizin Göttingen

Thomas Braulke

Universität Hamburg

M Wüstner

Krankenhaus der Barmherzigen Brüder Trier

Cooperative Institutions

Universität Hamburg

University Medical Center Hamburg-Eppendorf

University of Göttingen

Eppendorf (Germany)

Heidelberg University

Klinik und Poliklinik für Kinder- und Jugendmedizin

Kinderkrebs-Zentrum Hamburg

University Hospital Heidelberg

Boston Children's Hospital

Goethe University Frankfurt

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The DEM-CHILD Neuronal Ceroid Lipofuscinoses Patient Database: A Tool for the Evaluation of Therapies in Neuronal Ceroid Lipofuscinoses

Neuropediatrics (2015)

Ava Schulz Alessandro Simonati Matti Laine Dirk Kilian Ranjan William

Aims: The aim of the DEM-CHILD neuronal ceroid lipofuscinoses (NCL) patient database are as follows: (1) to collect, as thoroughly as possible, patients with different NCL forms in participating countries to measure the prevalence of each type of NCL, (2) to establish an NCL patient registry of long-lasting function to enable retrospective and prospective patient data collection and to precisely describe the clinical course and its variability in the different forms of NCL, (3) to correlate the genotype of patients with their phenotype by linking clinical and genetic mutation data, and (4) to establish a tool for evaluation of experimental therapy studies, as well as palliative therapies.

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10.1055/s-0035-1550650

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[Effect of fundus vagotomy on the gastric emptying of the solids and liquids of a meal in patients with and without postoperative duodenal ulcer recurrence].

PubMed (1985)

R Jian Dirk Kilian Y Grall F Ducrot P Valleur

Gastric fundus

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