This challenging and innovative book explores the political aspects of occupational therapy practice, developing this concept from the implications of occupational justice, and expanding on some of the ideas originally set out in OCCUPATIONAL THERAPY WITHOUT BORDERS. The book discusses how practitioners may develop political awareness in order to achieve goals in community development, or towards occupational goals, and is supported by twelve chapters of practice examples from the UK, US, Georgia and Australia as well as an important history of the profession as an agency for social change. Contents include significant theoretical chapters on gender, class and disability, challenges to holism, occupational literacy, and a discussion of political competence.
Holism is perceived to be one of the major tenets of occupational therapy. This article discusses the relevance of sexuality to holistic health care and contributes to the continuing discussion regarding the legitimacy of sexuality as an area of concern for occupational therapists. Sexuality is an important part of the human experience and is linked closely with spirituality. However, it is often neglected by occupational therapists. The article explores the occupational nature of sexuality and demonstrates its connection with the core concept of occupation. Moreover, considering the importance of spirituality in holistic care, the article also presents an overview of the relationship between sexuality and spirituality and illustrates sexuality as a dynamic identity component. It is proposed that occupational therapists should recognise sexuality and its importance in the individual's life and incorporate it into therapy.
People living with disability or chronic illness often use practices of care to construct a version of life they are satisfied with. Drawing from a narrative-based study with people living with motor neuron disease (MND), I show how one couple tried to be recognized as active agents in their life, although oscillating between positions of less and more power. Through an examination of the practices of care that the couple enacted, I illustrate how their positioning in relation to practices of care helped them create meaning in their life. In their efforts to create a way of living they were satisfied with, they engaged in negotiations between varieties of subjectivity. Their subjectivity was not static but was constructed as they shared power to carry out everyday self-care activities. The findings also underline the importance for health care practices of exploring the experiential knowledge of people living with MND.
Purpose: This review sought to answer the question "what is known about people's experiences of living with MND?". Methods: The review followed the guidelines of the Centre of Reviews and Dissemination. Twenty articles met the inclusion criteria and their results were analysed thematically. Data were managed and coded using the software package NVIVO and the analysis was performed in two stages, with the first stage aiming to develop descriptive themes offering an overview of the included data. During the second stage, analytical themes were developed with the explicit aim to answer the review question. Results: The themes that emerged point to the following: (a) people with motor neurone disease (MND) develop experiential knowledge that helps them to live with the disease and (b) while people with MND believe they do not have any control over the disease, they try to have control over their lives through active choices, e.g. how and when to use adaptive equipment. Conclusions: This review highlights the decision-making and knowledge generating processes used by people with MND. Further research is required to explore these processes and their implications for the care of people with MND. Implications for RehabilitationDecision-making process by MND patients regarding their care is complex and takes into account the social elements of the disease as well as the medical.Exploring the practical knowledge that patients develop can offer insights on appropriate care for MND patients.
During humanitarian crises, women are particularly vulnerable to unwanted pregnancy. Unsafe abortion is among the five leading causes of maternal mortality and it is the only one which is entirely preventable. This study aimed to identify the barriers and facilitators to the provision of safe abortion care by humanitarian organisations. We performed a scoping review of the literature in July 2020, covering the years 2010-2020, on the following databases: Medline, Global Health, CINAHL Plus and ReliefWeb. We critically appraised all included articles and we conducted a narrative synthesis of the findings. We retrieved 881 articles. After removing duplicates and excluding articles that did not meet the inclusion criteria, twenty-four articles published between 2015 and 2020 were included in the review. Nine of the included papers were non-research practise items. The findings revealed five main themes: legal environment; context; stigma; economic factors; and service delivery. Restrictive laws, stigma, and lack of funding were reported as the main barriers to safe abortion, while the main facilitators were the fact that abortion is permitted under some circumstances in most countries, humanitarian actors' ability to inform healthcare policies at the onset of a humanitarian crisis, and community engagement. This scoping review revealed a dearth of published research. Increased dissemination of studies on Termination of Pregnancy (ToP) could increase the visibility of unsafe abortion and the need to provide ToP in humanitarian settings. Moreover, humanitarian organisations need to have a clear protocol on safe abortion and an in-depth understanding of relevant legislation, including the International Humanitarian Law, in order to provide this service to the full extent of the law.
Community-based rehabilitation (CBR) is an approach that could usefully be applied by occupational therapists working towards access to occupation for all. CBR happens with, rather than in, the community. It allows communities to identify their problems and the causes, including the sociopolitical underpinnings of disability, to locate their needs and to take control of strategies that address those needs. A recent subproject of the World Federation of Occupational Therapists revealed a lack of consensus as to what constitutes CBR and a perceived overlap with community rehabilitation. This opinion piece aims to clarify the connection between the two approaches and to explore the implications for occupational therapists.
Abstract Background Disabled people are particularly exposed to the risks of COVID-19, as well as to the measures taken to address it, and their impact. The aim of the study was to examine the disability-inclusiveness of government responses to COVID-19 in four South American Countries: Argentina, Brazil, Chile, and Peru. Methods We conducted documentary research, using framework analysis to analyse reports, legislation, decrees, and other official documents that communicated measures taken in response to the pandemic, published from February 1st until May 22nd, 2020. We included documents reporting measures that affected disabled people either directly (measures specifically designed for disabled people) or indirectly (measures for the general population). We developed an analytical framework based on recommendations for disability-inclusive response to COVID-19 published by the Economic Commission for Latin America and the Carribean, the World Health Organisation, and other international organisations. Results We analysed 72 documents. The findings highlight that while some positive measures were taken, the needs of disabled people were not fully considered. Several countries published recommendations for a disability-inclusive response to COVID-19, without ensuring their translation to practice. All countries took at least some steps to ensure access to financial support, health, and education for disabled people, but at the same time they also implemented policies that had a detrimental impact on disabled people. The populations that are most exposed to the impacts of COVID-19, including disabled people living in institutional care, were protected in several cases only by recommendations rather by legislation. Conclusions This study illustrates how the official government responses taken by four countries in the region – while positive, in several aspects – do not fully address the needs of disabled people, thus further disadvantaging them. In order to ensure response to COVID − 19 is disability inclusive, it is necessary to translate recommendations to practice, consider disabled people both in mainstream policy and in disability-specific measures, and focus on the long-term reconstruction phase.
Purpose. The purpose of this article is to critically discuss issues that pertain to the operationalization of community participation in community-based rehabilitation (CBR).Method. Data were drawn from an international, questionnaire-based survey of occupational therapists involved in CBR conducted through the World Federation of Occupational Therapists. A search of CINAHL. PsychInfo and Medline databases for articles on CBR was performed and both descriptive articles and analytical ones were included.Results. Although there are guidelines on the nature of CBR these do not always match its application in practice. Active involvement of local communities in CBR projects is often limited, threatening the sustainability of CBR programmes. Furthermore, the failure to acknowledge the sociopolitical underpinnings and the cultural nature of disability is likely to compromise the nature of disabled people's involvement in CBR.Conclusions. There is confusion and lack of clarity about the nature of CBR. Educational modules on CBR should be made available to professionals. These should consider the importance of community involvement and context-specific and culture-sensitive programmes in practice.