Jeanne Bertolli

Centers for Disease Control and Prevention

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Denise J. Jamieson

Emory University

Elizabeth R. Unger

Centers for Disease Control and Prevention

Margaret A. Honein

Centers for Disease Control and Prevention

Sascha Ellington

Centers for Disease Control and Prevention

Jennifer L. Fagan

Centers for Disease Control and Prevention

Ho-Wen Hsu

University of Massachusetts Chan Medical School

Georgina Peacock

Centers for Disease Control and Prevention

Tamara Rakusan

Children's National

Linda Beer

Centers for Disease Control and Prevention

Kim Kotzky

Oak Ridge Associated Universities

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Centers for Disease Control and Prevention

309

Center for Surveillance, Epidemiology, and Laboratory Services

Emory University

National Center for HIV/AIDS Viral Hepatitis STD and TB Prevention

The Centers

National Center for Emerging and Zoonotic Infectious Diseases

AID Atlanta

Epidemic Intelligence Service

National Center for Immunization and Respiratory Diseases

National Center on Birth Defects and Developmental Disabilities

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AIDS Patient Care and STDs (2009)

Linda Beer Jennifer L. Fagan Eduardo Valverde Jeanne Bertolli

In the United States, the publically supported national HIV medical care system is designed to provide HIV medical care to those who would otherwise not receive such care. Nevertheless, many HIV-infected persons are not receiving medical care. Limited information is available from HIV-infected persons not currently in care about the reasons they are not receiving care. From November 2006 to February 2007, we conducted five focus groups at community-based organizations and health departments in five U.S. cities to elicit qualitative information about barriers to entering HIV care. The 37 participants were mostly male (n = 29), over the age of 30 (n = 34), and all but one had not received HIV medical care in the previous 6 months. The focus group discussions revealed health belief-related barriers that have often been overlooked by studies of access to care. Three key themes emerged: avoidance and disbelief of HIV serostatus, conceptions of illness and appropriate health care, and negative experiences with, and distrust of, health care. Our findings point to the potentially important influence of these health-related beliefs on individual decisions about whether to access HIV medical care. We also discuss the implications of these beliefs for provider-patient communication, and suggest that providers frame their communications with patients such that they are attentive to the issues identified by our respondents, to better engage patients as partners in the treatment process.

Serostatus

Distrust

10.1089/apc.2009.0032

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Citations (73)

Survey Design and Implementation

SAGE Publications, Inc. eBooks (2015)

Kathy Hageman Andrea Kim Travis Sanchez Jeanne Bertolli

10.4135/9781483398839.n12

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Citations (7)

AIDS Education and Prevention (2006)

Jodi Lapidus Jeanne Bertolli Karen A. McGowan Patrick S. Sullivan

The goal of this study was to describe HIV risk behaviors, perceptions, testing, and prevention exposure among urban American Indians and Alaska Natives (AI/AN). Interviewers administered a questionnaire to participants recruited through anonymous peer–referral sampling. Chi–square tests and multiple logistic regression were used to compare HIV testing by perception of risk and risk behavior status. Of 218 respondents with seronegative or unknown HIV status, 156 (72%, 95% confidence interval [CI]: 66–78%) reported some HIV risk behavior: 57 (26%, 95% CI: 20–32%) high–risk behavior, and 99 (45%, 95% CI: 39–52%), potentially high–risk. Among respondents reporting high–risk behavior, 44% rated themselves at no or low risk for HIV infection. Overall, 180 respondents (83%, 95% CI: 78–88%) had ever received an HIV test, 79 (36%, 95% CI: 31–57%) in the past year. HIV risk behaviors and perception of risk were independently associated with recent HIV testing after adjustment for gender, income, and homelessness (odds ratio [OR] = 3.6; 95% CI: 1.5–9.0 for high–risk behavior vs. no reported risk behavior, and OR: 3.2; 95% CI: 1.3–7.6, for high vs. no perceived risk). Addressing inaccurate perception of risk may be a key to improving uptake of HIV testing among high–risk urban AI/AN.

Risk Perception

10.1521/aeap.2006.18.6.546

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Citations (27)

PCR61 Persistent Work Limitations in Long COVID: A Cross-Sectional Analysis of Employed US Respondents to the 2022 National Health and Wellness Survey

Value in Health (2023)

Ashley Martin Katharine Thomson A. LePrade Jeanne Bertolli Scott D. Grosse

Presenteeism

Depression

Cross-sectional study

Patient Health Questionnaire

10.1016/j.jval.2023.03.1840

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Citations (0)

Evaluation of natural killer cell assay performance on shipped blood specimens

Journal of Immunological Methods (2021)

Troy D. Querec Joseph Y. Abrams Jennifer J. Stewart Zachary Barnes Elizabeth Balbin

Interquartile range

Coefficient of variation

Gold standard (test)

10.1016/j.jim.2021.113049

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Citations (3)

Missed Connections: HIV-Infected People Never in Care

Public Health Reports (2013)

Jeanne Bertolli Pamela Morse Garland Eduardo Valverde Linda Beer Jennifer L. Fagan

Objective. Clinical interventions that lengthen life after HIV infection and significantly reduce transmission could have greater impact if more HIV-diagnosed people received HIV care. We tested a surveillance-based approach to investigating reasons for delayed entry to care. Methods. Health department staff in three states and two cities contacted eligible adults diagnosed with HIV four to 24 months previously who had no reported CD4+ lymphocyte (CD4) or viral load (VL) tests. The staff conducted interviews, performed CD4 and VL testing, and provided referrals to HIV medical care. Reported CD4 and VL tests were prospectively monitored to determine if respondents had entered care after the interview. Results. Surveillance-based follow-up uncovered problems with reporting CD4 and VL tests, resulting in surveillance improvements. However, reporting problems led to misspent effort locating people who were already in care Follow-up proved difficult because contact information in surveillance case records was often outdated or incorrect. Of those reached, 37% were in care and 29% refused participation. Information from 132 people interviewed generated ideas for service improvements, such as emphasizing the benefits of early initiation of HIV care, providing coverage eligibility information soon after diagnosis, and leveraging other medical appointments to provide assistance with linkage to HIV care. Conclusions. Surveillance-based follow-up of HIV-diagnosed individuals not linked to care provided information to improve both surveillance and linkage services, but was inefficient because of difficulties identifying, locating, and recruiting eligible people. Inefficiencies attributable to missing, incomplete, or inaccurate surveillance records are likely to diminish as data quality is improved through ongoing use.

Medical record

10.1177/003335491312800207

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Citations (19)

T Cell Activation in Pediatric AIDS Pathogenesis: Three-Color Immunophenotyping

Clinical Immunology and Immunopathology (1994)

S Plaeger-Marshall Valentin Isacescu Sheryl O'Rourke Jeanne Bertolli Yvonne J. Bryson

Immunophenotyping

Pathogenesis

10.1006/clin.1994.1046

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Citations (72)

Assessment of contraceptive use in Puerto Rico during the 2016 Zika virus outbreak

Contraception (2020)

Sascha Ellington Ruby Serrano Rodriguez Howard I. Goldberg Jeanne Bertolli Regina M. Simeone

Zika Virus

Unintended Pregnancy

Misinformation

10.1016/j.contraception.2020.03.001

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Citations (9)

Methods to include persons living with HIV not receiving HIV care in the Medical Monitoring Project

PLoS ONE (2019)

Stanley C. Wei Lauren C. Messina Julia E. Hood Alison J. Hughes Thomas Jaenicke

The Medical Monitoring Project (MMP) is an HIV surveillance system that provides national estimates of HIV-related behaviors and clinical outcomes. When first implemented, MMP excluded persons living with HIV not receiving HIV care. This analysis will describe new case-surveillance-based methods to identify and recruit persons living with HIV who are out of care and at elevated risk for mortality and ongoing HIV transmission. Stratified random samples of all persons living with HIV were selected from the National HIV Surveillance System in five public health jurisdictions from 2012–2014. Sampled persons were located and contacted through seven different data sources and five methods of contact to collect interviews and medical record abstractions. Data were weighted for non-response and case reporting delay. The modified sampling methodology yielded 1159 interviews (adjusted response rate, 44.5%) and matching medical record abstractions for 1087 (93.8%). Of persons with both interview and medical record data, 264 (24.3%) would not have been included using prior MMP methods. Significant predictors were identified for successful contact (e.g., retention in care, adjusted Odds Ratio [aOR] 5.02; 95% Confidence Interval [CI] 1.98–12.73), interview (e.g. moving out of jurisdiction, aOR 0.24; 95% CI: 0.12–0.46) and case reporting delay (e.g. rural residence, aOR 3.18; 95% CI: 2.09–4.85). Case-surveillance-based sampling resulted in a comparable response rate to existing MMP methods while providing information on an important new population. These methods have since been adopted by the nationally representative MMP surveillance system, offering a model for public health program, research and surveillance endeavors seeking inclusion of all persons living with HIV.

Medical record

Stratified Sampling

Odds

10.1371/journal.pone.0219996

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Citations (2)

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Adults: United States, 2021-2022

Anjel Vahratian Jin-Mann S. Lin Jeanne Bertolli Elizabeth R. Unger

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, multisystem illness characterized by activity-limiting fatigue, worsening of symptoms after activity, and other symptoms (1). It affects all age, sex, and racial and ethnic groups and costs the U.S. economy about $18-$51 billion annually (2-5). This report describes the percentage of adults who had ME/CFS at the time of interview by selected demographic and geographic characteristics based on data from the 2021-2022 National Health Interview Survey (NHIS).

Encephalomyelitis

10.15620/cdc:134504

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Citations (19)