Noé Brito García

Sociedad Española de Reumatología

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Petra Díaz del Campo Fontecha

Sociedad Española de Reumatología

Félix Manuel Francisco Hernández

Hospital Universitario de Gran Canaria Doctor Negrín

María Correyero Plaza

Hospital Universitario 12 De Octubre

Liesbeth de Wit

University of Groningen

Javier Narváez

Bellvitge University Hospital

Monique Raats

University of Surrey

Lada Timotijević

University of Surrey

Kerry Brown

London School of Hygiene & Tropical Medicine

Liisa Lähteenmäki

Aarhus University

Maria Asunción Nieto

Hospital Clínico San Carlos

Cooperative Institutions

Centro de Investigación Biomédica en Red

Center for Rheumatology

Instituto de Salud Carlos III

Fundación Canaria de Investigación Sanitaria

Universitat de Barcelona

Universidad Complutense de Madrid

Sociedad Española de Reumatología

University of Surrey

Hospital General Universitario Gregorio Marañón

Universitat Autònoma de Barcelona

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Communication of scientific uncertainty: international case studies on the development of folate and vitamin D recommendations

KA Brown Liesbeth de Wit Lada Timotijević A-M Sonne Liisa Lähteenmäki

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COSTE-EFECTIVIDAD DE LA VACUNACIÓN CONTRA LA GRIPE ESTACIONAL PARA DIFERENTES GRUPOS DE EDAD: UNA REVISIÓN SISTEMÁTICA

Revista Española de Salud Pública (2018)

Cristina Valcárcel‐Nazco Borja García Lorenzo Tasmania del Pino‐Sedeño Lidia García‐Pérez Noé Brito García

RESUMEN Fundamentos: Dada la carga economica que supone para el sistema sanitario la gripe estacional, se plantea esta revision sistematica cuyo objetivo fue actualizar la evidencia disponible sobre el coste-efectividad de vacunacion contra la gripe estacional en diferentes grupos de edad, incluyendo poblacion infantil. Metodos: Se llevo a cabo una revision sistematica de la literatura de evaluaciones economicas de los programas de vacunacion contra la gripe estacional en ninos y adultos. Se realizaron busquedas en las bases de datos (enero 2013 - abril 2018): Medline y PREMEDLINE, EMBASE, EconLit y en las bases de datos del Centre for Reviews and Dissemination (DARE, HTA, NHS EED). Resultados: Se incluyeron 11 evaluaciones economicas. La calidad metodologica de los estudios incluidos fue buena. La evidencia cientifica muestra que los programas de vacunacion contra la gripe estacional en ninos en edad escolar pueden ser una estrategia coste-efectiva desde la perspectiva sanitaria en paises europeos. La evidencia cientifica disponible hasta el momento no nos permite concluir que los programas de vacunacion antigripal en adultos sanos de menos de 65 anos de edad sean una alternativa coste-efectiva en nuestro contexto, debido a la elevada incertidumbre existente y a la escasez de estudios realizados en el contexto espanol. Conclusiones: Los programas de vacunacion contra la gripe estacional en ninos en edad escolar (3-16 anos) pueden ser una estrategia coste-efectiva desde la perspectiva del SNS.

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Recommendations by the Spanish Society of Rheumatology on the management of patients with fibromyalgia. Part II

Reumatología Clínica (English Edition) (2021)

Javier Rivera Redondo Petra Díaz del Campo Fontecha Cayetano Alegre de Miquel Miriam Almirall Bernabé Benigno Casanueva Fernández

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Clinical Practice

10.1016/j.reumae.2021.01.005

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Recomendaciones SER sobre el tratamiento del síndrome de Behçet refractario

Reumatología Clínica (2024)

Clara Moriano Morales Jenaro Graña Gil Noé Brito García J. L. Martín-Varillas V. Calvo del Rio

10.1016/j.reuma.2023.12.001

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Communication of scientific uncertainty: international case studies on the development of folate and vitamin D Dietary Reference Values

Public Health Nutrition (2014)

Kerry Brown Liesbeth de Wit Lada Timotijević Anne‐Mette Sonne Liisa Lähteenmäki

Transparent evidence-based decision making has been promoted worldwide to engender trust in science and policy making. Yet, little attention has been given to transparency implementation. The degree of transparency (focused on how uncertain evidence was handled) during the development of folate and vitamin D Dietary Reference Values was explored in three a priori defined areas: (i) value request; (ii) evidence evaluation; and (iii) final values.Qualitative case studies (semi-structured interviews and desk research). A common protocol was used for data collection, interview thematic analysis and reporting. Results were coordinated via cross-case synthesis.Australia and New Zealand, Netherlands, Nordic countries, Poland, Spain and UK.Twenty-one interviews were conducted in six case studies.Transparency of process was not universally observed across countries or areas of the recommendation setting process. Transparency practices were most commonly seen surrounding the request to develop reference values (e.g. access to risk manager/assessor problem formulation discussions) and evidence evaluation (e.g. disclosure of risk assessor data sourcing/evaluation protocols). Fewer transparency practices were observed to assist with handling uncertainty in the evidence base during the development of quantitative reference values.Implementation of transparency policies may be limited by a lack of dedicated resources and best practice procedures, particularly to assist with the latter stages of reference value development. Challenges remain regarding the best practice for transparently communicating the influence of uncertain evidence on the final reference values. Resolving this issue may assist the evolution of nutrition risk assessment and better inform the recommendation setting process.

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Evidence-Based Practice

10.1017/s1368980014002006

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Transparency and uncertainty in scientific advisory bodies: five European case studies

Kerry Brown Lada Timotijević Liesbeth de Wit Noé Brito García W. Roszkowski

Introduction: There have been calls within Europe to harmonise the process of setting micronutrient recommendations and share best practice between countries and regions. However the various scientific advisory bodies (SAB) responsible for setting recommendations appear to differ by their statutory model of operation as well as the degree of transparency available throughout the decision making process. particularly concerning the handling of risk and uncertainty. Objectives: The present study explored how risk and uncertainty was handled in SABs across Europe. Particular attention was paid to understanding the types of deliberations surrounding the terms of reference. selection of expertise. sources of evidence. evaluation of evidence and communication of findings to policy decision makers. wider stakeholders and the general public. Method/Design: A retrospective in-depth case study design was used to explore how risk and uncertainty were handled in the SABs concerning the vitamin D and folate nutrient recommendations in five countries/regions: England. the Netherlands. Poland. Spain and the Nordic countries. A case study consisted of semi-structured interviews with at least two members of SAB as well as in-depth desk research surrounding the recommendations. Interview data was analysed in the native language using template analysis and a skeleton coding structure created and modified by partners during preliminary analyses. Thematic analysis was then carried out by each country and an English-translated summary of identified themes and illustrative quotes was produced and combined with the desk research to form each case study. Results: This paper will explore any disparity in decision making around risk and uncertainty across countries/regions and micronutrients. Conclusions: Implications for the interaction between science and policy in terms of evidence based policy decision making will be discussed.

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The Stakeholders’ Views on Factors Influencing Nutrition Policy: a Qualitative Study Across Ten European Countries

Polish Journal of Food and Nutrition Sciences (2015)

Marta Jeruszka-Bielak Ewa Sicińska Liesbeth de Wit Jiří Ruprich Irena Řehůřková

1. Policy challenges of food advertisements from the viewpoints of Stakeholders: A qualitative study Fatemeh Mohammadi‐Nasrabadi, Yeganeh Salmani, Seyed Banihashemi, Roudsari Haghighian, Azizollaah Zargaraan, Fatemeh Esfarjani Food Science & Nutrition CrossRef

Non-communicable disease

10.1515/pjfns-2015-0039

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SER recommendations for the treatment of uveitis

Reumatología Clínica (English Edition) (2023)

Emma Beltrán Catalán Noé Brito García E. Pato Cour Santiago Muñoz Fernández Alejandro Gómez‐Gómez

Grading (engineering)

10.1016/j.reumae.2023.07.003

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Reply to the Letter to the Editor from Drs Suárez-Diaz and Caminal-Montero in reference to the special article “Recommendations for prevention of infection in systemic autoimmune rheumatic diseases”