Alarcos Cieza

World Health Organization

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i-10 index

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Co-Authors

Gerold Stucki

University of Lucerne

166

Nenad Kostanjsek

World Health Organization

Somnath Chatterji

World Health Organization

Michaela Coenen

Ludwig-Maximilians-Universität München

Carla Sabariego

University of Lucerne

Szilvia Geyh

University of Lucerne

Inge Kirchberger

University of Augsburg

Cornelia Oberhauser

Ludwig-Maximilians-Universität München

Annelies Boonen

Maastricht University

Alexandra Rauch

World Health Organization

Cooperative Institutions

Ludwig-Maximilians-Universität München

113

World Health Organization

Charité - Universitätsmedizin Berlin

Swiss Paraplegic Research

University of Warmia and Mazury in Olsztyn

Universidade Nova de Lisboa

Instituto Politécnico de Lisboa

Hospital Posadas

University of Lucerne

University of Melbourne

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i-10 index

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Explaining functioning outcomes across musculoskeletal conditions: a multilevel modelling approach

Disability and Rehabilitation (2010)

Alarcos Cieza Cristina Bostan Cornelia Oberhauser Jerome Bickenbach

Purpose. To determine whether changes in health outcomes result from changes in domains of functioning and relevant environmental factors in musculoskeletal conditions.Method. Longitudinal observational study on a convenience sample of 291 patients with low back pain, osteoarthritis, osteoporosis, rheumatoid arthritis and chronic widespread pain. The study was part of the MHADIE project. Data collection was performed at baseline, after 4 and 8 weeks using the ICF Core Sets for the corresponding musculoskeletal conditions. Multilevel models for change were used to determine which ICF categories explain the variability and change over time of the general, physical and mental health according to the SF-36.Results. There are only small fluctuations in the health outcomes. These are related to functions of the locomotor apparatus, such as muscle power, and to activities and participation domains related to them, such as lifting and carrying objects. A large amount of baseline variance is explained with a relatively small number of ICF categories of functioning.Conclusions. This study presents a list of functioning problems and environmental factors relevant to map out both the patterns and the variations in the experience of living with a chronic and painful condition. These are intervention targets common across MSC conditions.

Musculoskeletal pain

Musculoskeletal disorder

10.3109/09638288.2010.515702

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Citations (7)

Identification of Essential Elements of Functioning in Chronic Widespread Pain Based on a Statistical Approach

American Journal of Physical Medicine & Rehabilitation (2011)

Robin Hieblinger Michaela Coenen Gerold Stucki Andreas Winkelmann Alarcos Cieza

This study aimed to study the most relevant International Classification of Functioning, Disability, and Health (ICF) categories for describing functioning and disability in patients with chronic widespread pain (CWP). The specific aims of the study are (1) to identify which ICF categories explain the most variance of the experience of health in CWP and (2) to compare the identified ICF categories to the ICF categories of the Brief ICF Core Set for CWP.The ICF categories entered in an initial regression model were selected according to their correlation with item 1 of the Medical Outcomes Survey 36-Item Short-Form Health Survey (SF-36). Based on an initial regression model, additional regression models were performed through systematically substituting the ICF categories included in the initial model with ICF categories from the same chapter with which they highly correlated.Eleven categories were identified. Six of them are included in the Brief ICF Core Set for CWP.Most of the categories identified in the regression models are similar to the domains identified in Outcome Measures in Rheumatoid Arthritis Clinical Trials workshops and are represented in the Brief ICF Core Set for CWP, either directly or in ICF categories from the same chapters. Based on the 11 identified categories, clinicians and health professionals can obtain an efficient overview regarding the level of functioning of their patients in those essential areas that best differentiate among various levels of functioning.

Identification

10.1097/phm.0b013e318228c89c

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Citations (7)

Identification of problems in individuals with spinal cord injury from the health professional perspective using the ICF: a worldwide expert survey

Spinal Cord (2010)

M Scheuringer Inge Kirchberger Christine Boldt Inge Eriks‐Hoogland Alexandra Rauch

Identification

10.1038/sc.2009.176

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Citations (39)

The ICF Core Set for stroke from the perspective of physicians: a worldwide validation study using the Delphi technique.

PubMed (2010)

I Lemberg Inge Kirchberger Gerold Stucki Alarcos Cieza

The ICF Core Set for stroke is an application of the International Classification of Functioning, Disability and Health (ICF) and represents the typical spectrum of problems in functioning of patients with stroke.The aim of this study was to validate the ICF Core Set for stroke from the perspective of physicians.Observational.Other.Physicians experienced in stroke treatment.Physicians experienced in stroke treatment were asked about the patients' problems, patients' resources and aspects of environment that physicians take care of in a three-round electronic mail survey using the Delphi technique. The responses were linked to the ICF by two persons. The degree of agreement was calculated using Kappa statistic.Eighty-eight physicians in 30 countries named 2142 patients' problems that covered all ICF components. Two hundred seventy-seven ICF categories were linked to these. Kappa statistic for agreement reached 0.68 with a 95% confidence interval of 0.66-0.69. Although 28 ICF categories were not represented in the ICF Core Set for stroke, only four of them were considered as important by at least 75% of the participants. Those categories addressed sensations associated with cardiovascular and respiratory functions, urinary excretory functions, involuntary movement functions and sensations related to muscle and movement functions.The validity of the ICF components Body structures, Activities and Participation, and Environ-mental Factors was fully supported. Only some body functions were identified that were not covered and need to be investigated further.

Stroke

Delphi Method

Cohen's kappa

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Citations (56)

Characterization of functioning in multiple sclerosis using the ICF

Journal of Neurology (2009)

Lisa Holper Michaela Coenen Andrea Weise Gerold Stucki Alarcos Cieza

Depression

10.1007/s00415-009-5282-4

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Citations (128)

Validation of the International Classification of Functioning, Disability and Health Comprehensive Core Set for Osteoporosis

Journal of Geriatric Physical Therapy (2011)

Barbara Koehler Inge Kirchberger Andrea Glaessel Jan Kool Gerold Stucki

The "Comprehensive ICF Core Set for Osteoporosis" is an application of the International Classification of Functioning, Disability and Health (ICF) and represents the typical spectrum of functioning problems of patients with osteoporosis. The objective of this study was to validate this ICF Core Set from the perspective of physical therapists.Using a 3-round Delphi technique survey, physical therapists, experienced in the treatment of patients with osteoporosis, were surveyed about patient problems, resources, and aspects of the environment relevant to the physical therapy management of individuals with OP. Responses were translated ("linked") into ICF language by using standardized rules.Fifty-seven physical therapists across 25 countries representing each World Health Organization region named 816 factors (patient problems, available resources, and environmental influences). These 816 factors were linked to 160 ICF categories. Twenty-five categories with an agreement among the participants exceeding 75% were not represented in the Comprehensive ICF Core Set for Osteoporosis. Fifteen concepts were linked to the as yet undeveloped ICF component. Personal Factors and 9 concepts were found not to be covered by the ICF.The validity of the Comprehensive ICF Core Set for Osteoporosis was largely supported by the participants. Nine concepts (eg, "posture," "alignment," "ergonomics") identified by participants are not covered by the ICF and require further investigation.

Delphi Method

10.1519/jpt.0b013e31820aa990

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Citations (16)

Development of the first disability index for inflammatory bowel disease based on the international classification of functioning, disability and health

Gut (2011)

Laurent Peyrin‐Biroulet Alarcos Cieza William J. Sandborn Michaela Coenen Yehuda Chowers

Objective

The impact of inflammatory bowel disease (IBD) on disability remains poorly understood. The World Health Organization9s integrative model of human functioning and disability in the International Classification of Functioning, Disability and Health (ICF) makes disability assessment possible. The ICF is a hierarchical coding system with four levels of details that includes over 1400 categories. The aim of this study was to develop the first disability index for IBD by selecting most relevant ICF categories that are affected by IBD.

Methods

Relevant ICF categories were identified through four preparatory studies (systematic literature review, qualitative study, expert survey and cross-sectional study), which were presented at a consensus conference. Based on the identified ICF categories, a questionnaire to be filled in by clinicians, called the ‘IBD disability index’, was developed.

Results

The four preparatory studies identified 138 second-level categories: 75 for systematic literature review (153 studies), 38 for qualitative studies (six focus groups; 27 patients), 108 for expert survey (125 experts; 37 countries; seven occupations) and 98 for cross-sectional study (192 patients; three centres). The consensus conference (20 experts; 17 countries) led to the selection of 19 ICF core set categories that were used to develop the IBD disability index: seven on body functions, two on body structures, five on activities and participation and five on environmental factors.

Conclusions

The IBD disability index is now available. It will be used in studies to evaluate the long-term effect of IBD on patient functional status and will serve as a new endpoint in disease-modification trials.

10.1136/gutjnl-2011-300049

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Citations (317)

Mapping the content of the Patient-Reported Outcomes Measurement Information System (PROMIS®) using the International Classification of Functioning, Health and Disability

Quality of Life Research (2014)

Carole A. Tucker Reuben Escorpizo Alarcos Cieza Jin Lai Gerold Stucki

Item bank

10.1007/s11136-014-0691-y

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Citations (50)

Toward Universal Eye Health Coverage—Key Outcomes of the World Health Organization Package of Eye Care Interventions

JAMA Ophthalmology (2022)

Stuart Keel Gareth Lingham Neha Misra Sandra S. Block Rupert Bourne

Importance Despite persistent inequalities in access to eye care services globally, guidance on a set of recommended, evidence-based eye care interventions to support country health care planning has not been available. To overcome this barrier, the World Health Organization (WHO) Package of Eye Care Interventions (PECI) has been developed. Objective To describe the key outcomes of the PECI development. Evidence Review A standardized stepwise approach that included the following stages: (1) selection of priority eye conditions by an expert panel after reviewing epidemiological evidence and health facility data; (2) identification of interventions and related evidence for the selected eye conditions from a systematic review of clinical practice guidelines (CPGs); stage 2 included a systematic literature search, screening of title and abstracts (excluding articles that were not relevant CPGs), full-text review to assess disclosure of conflicts of interest and affiliations, quality appraisal, and data extraction; (3) expert review of the evidence extracted in stage 2, identification of missed interventions, and agreement on the inclusion of essential interventions suitable for implementation in low- and middle-income resource settings; and (4) peer review. Findings Fifteen priority eye conditions were chosen. The literature search identified 3601 articles. Of these, 469 passed title and abstract screening, 151 passed full-text screening, 98 passed quality appraisal, and 87 were selected for data extraction. Little evidence (≤1 CPG identified) was available for pterygium, keratoconus, congenital eyelid disorders, vision rehabilitation, myopic macular degeneration, ptosis, entropion, and ectropion. In stage 3, domain-specific expert groups voted to include 135 interventions (57%) of a potential 235 interventions collated from stage 2. After synthesis across all interventions and eye conditions, 64 interventions (13 health promotion and education, 6 screening and prevention, 38 treatment, and 7 rehabilitation) were included in the PECI. Conclusions and Relevance This systematic review of CPGs for priority eye conditions, followed by an expert consensus procedure, identified 64 essential, evidence-based, eye care interventions that are required to achieve universal eye health coverage. The review identified some important gaps, including a paucity of high-quality, English-language CPGs, for several eye diseases and a dearth of evidence-based recommendations on eye health promotion and prevention within existing CPGs.

Critical appraisal

10.1001/jamaophthalmol.2022.4716

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Citations (15)

Most common problems across health conditions as described by the International Classification of Functioning, Disability, and Health

International Journal of Rehabilitation Research (2015)

Pavel Ptyushkin Alarcos Cieza Gerold Stucki

Health conditions are associated with a variety of functional outcomes. Even though functional outcomes are diverse for different health conditions, they can have important commonalities. The aim of this study was to identify the most common problems in functioning across the wide range of health conditions using the International Classification of Functioning (ICF). Existing databases created for the 21 ICF Core Sets studies were descriptively analyzed. These included data collected in 44 countries on 9978 patients with one of 21 health conditions as the main diagnosis. A frequency cutoff of 50% was used to identify the most common problems in functioning when looking at single health conditions and across them. No category was identified as common to all health conditions included in the study. Fifteen most frequent categories were common in 10 to 13 health conditions out of 21. Eleven categories correspond to the list of activities and participation, and four to the list of body functions. These are related to mobility, daily routine, mental functions, intimate relations, employment, and leisure. Some health conditions have more commonalities between each other. The most common problems across health conditions are therefore related to mental functions, mobility, daily life, intimate relations, employment, and leisure. The results contribute toward the identification of the universal set of ICF categories that can be used in clinical practice for the general assessment of functioning.

Identification

10.1097/mrr.0000000000000124

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Citations (10)