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Anne Edwards

RTI International

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“Just tell me what’s going on”: The views of parents of children with genetic conditions regarding the research use of their child’s electronic health record

2020 Journal of the American Medical Informatics Association
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Decisional Capacity for Informed Consent in Males and Females with Fragile X Syndrome

2019 Journal of Autism and Developmental Disorders
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Perspectives of Young Adults with an Autism Spectrum Disorder on the Use of Electronic Health Records in Research: The Balance between Privacy and Genetic Discovery

2018
- Anne Edwards
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Mindfulness and Acceptance as Potential Protective Factors for Mothers of Children With Fragile X Syndrome

2018 Frontiers in Public Health
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DSM-5 Changes and the Prevalence of Parent-Reported Autism Spectrum Symptoms in Fragile X Syndrome.

2015 Journal of Autism and Developmental Disorders
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