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Gabor Pogany

13

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A ritka betegségek ellátásának aktuális kérdései

2017 Orvosi Hetilap
- Gabor Pogany
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Social/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe

2016 European Journal of Health Economics
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DISEASE BURDEN OP DUCHENNE MUSCULAR DYSTROPHY PATIENTS AND THEIR CAREGIVERS

2016 Ideggyogyaszati Szemle-clinical Neuroscience
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Health Related Quality of Life of Patients and Their Caregivers In Rare Diseases Results of the Burqol-Rd Project In Hungary.

2014 Value in Health
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[Cystic fibrosis -- disease burden and health-related quality of life of patients and their caregivers: results of the European BURQOL-RD survey in Hungary].

2014 Orvosi Hetilap
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Can people living with a rare disease be independent? Inspiring personal stories

2014 Orphanet Journal of Rare Diseases
- Gabor Pogany
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Diagnostic delay of rare diseases in Europe and in Hungary

2012 Orvosi Hetilap
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The present situation of Rare Diseases in Central/Eastern Europe? The role of patient organisations

2010 Orphanet Journal of Rare Diseases
- Gabor Pogany
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火刑台上のジャンヌ・ダルク = Jeanne au bûcher

2003
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